Ok, so I needed to sit down and write this because I have had a shocking start to my day, which came to a head whilst picking up my prescription for my pain meds. A woman decided that she would get out of her car and shout at me for parking somewhere I shouldn't. What was… Continue reading All about… being in someone else’s shoes.
Exciting times as I start thinking about what I want my future to hold. I just need to find a way to better organise my thoughts, as brain fog is such a destructive force. I start to make a plan only for the haze to settle. I then allow myself to become distracted and three… Continue reading All about… setting the mood
Yesterday was World Suicide Prevention Day. Until this year, I had no idea that such a day existed. It became relevant this year. Two weeks before the international day to help people with suicidal tendencies, my friend D decided to take his own life. It's not the first time that suicide has touched my life… Continue reading All about… being aware
When I started this blog, I was adamant that I would have a new post every week. I was so determined. And yet, after only four entries, I needed a hiatus. The truth is I constantly underestimate how much I am trying to do with such a limited amount of energy. I love the blog… Continue reading All about… time to breathe
I received this letter from the HMSA when I became a member. This was so incredibly helpful. Some of the terminology is now classed as out of date but the message is still valid. Use this to start a conversation with your family, friends or peers. I hope you find this as helpful as I… Continue reading All about… this useful letter.
"You remember Auntie Elsie, she danced in the moonlight during the third new moon with a radish and an artichoke whilst naked, chanting songs by ABBA. It cured her of her illness. You should try it." "Or remember Uncle Malcolm. He had what you had and he was fine after taking paracetamol." Unsolicited advice; it… Continue reading All about… what your Auntie Elsie did.
If it walks like a zebra and talks like a zebra... When I was diagnosed with Hypermobility Syndrome, I found myself part of a global community. We call ourselves Zebras. It's a term you come across constantly and it is one that provokes an image of unity. But why the zebra, you ask? "If you… Continue reading All about… being an imposter.